Rare Diseases Bluesky Starter Packs
Over 4 Rare Diseases starter packs to help you get started on Bluesky.
PSC
PSC
Bluesky starter pack
This is a starter pack of people researching primary sclerosing cholangitis. We're a rare bunch, like PCS itself, so please recommend/invite others working on PSC.
Kate Coldwell
@katecoldwell.bsky.social1 mentions
hEDS & Co. Conditions Support #NEISVoid
hEDS & Co. Conditions Support #NEISVoid
Bluesky starter pack
Just some of the individuals & organisations that support/help those of us with any of these #NEISVoid conditions #hEDS #EDS/#HSD #POTS/#OI #Dysautonomia #pwME #ME/CFS #MCAS #CCI #LongCovid #Covid #ND (List will alter). May we now grow in a better environment here to help find the less rocky route.
@BendyHEDS&Co
@bendyhedsandco.bsky.social2 mentions
DSRCT Support Group
DSRCT Support Group
Bluesky starter pack
DSRCT is a rare childhood sarcoma. This post is intended to gather information in one place for patients, caregivers, family, friends and anyone interested in this type of cancer.
Patty
@dsrct.bsky.social1 mentions
Pediatric Pulmonology Rockstars
Pediatric Pulmonology Rockstars
Bluesky starter pack
Follow us to chat about babies, inhalers, rare lung disease and equity. Small AND mighty!
Terri Laguna MD MSCS ATSF
@terrilaguna.bsky.social1 mentions