Patient Advocacy Bluesky Starter Packs

Over 74 Patient Advocacy starter packs to help you get started on Bluesky.

Latest Patient Advocacy Starter Packs

PSC

Bluesky starter pack

This is a starter pack of people researching primary sclerosing cholangitis. We're a rare bunch, like PCS itself, so please recommend/invite others working on PSC.

Kate Coldwell

@katecoldwell.bsky.social

1 mentions

May 8, 2025

Long Covid starter pack 2

Bluesky starter pack

This is my second starter pack for #LongCovid and #Covid-19 aware folk to follow on Bluesky. Non-exhaustive not limited to LC, but I hope you find this helpful. Suggestions welcome.

Scribbler Pen

@scribblerpen.bsky.social

2 mentions

May 4, 2025

MS is BS (Beaten Soon)

Bluesky starter pack

My first attempt at a starter pack and wanted to work on making more connections with #MultipleScleroris connected folks. Hopefully this also helps you make more of these connections. We got this!

Maya NH

@1mayanh.bsky.social

1 mentions

Apr 30, 2025

Obskyn/ObGynSky Part 2

Bluesky starter pack

We are fellow #obgyns of all specialties and subspecialties in all practice types, educating trainees, taking care of patients, navigating landscapes. Advocating for our patients and colleagues. Tag a colleague.

Camille A. Clare MD MPH

@cclaremdmph.bsky.social

1 mentions

Apr 1, 2025

AACI Starter Pack

Bluesky starter pack

This starter pack features AACI member cancer centers with a presence on Bluesky.

AACI

@aacicancer.bsky.social

1 mentions

Mar 25, 2025

Rare Disease

Bluesky starter pack

A feed for the rare disease community

autumnwaves.bsky.social

@autumnwaves.bsky.social

2 mentions

Mar 8, 2025

💜💜Lupus Warriors💜💜

Bluesky starter pack

💜💜Lupus Warriors and family, friends, loved ones, spouses or partners!💜💜Spreading Awareness!💜💜

Janet Marx

@janetmarx.bsky.social

1 mentions

Mar 4, 2025

Therapies for mitochondrial disorders

Bluesky starter pack

#Therapies for #mitochondrial #disorders community. You are welcome to join by commenting or sending me a note! #therapy #mitochondria #mitochondrialdisease

Catalina Vasilescu, PhD

@cvasilescu.bsky.social

1 mentions

Feb 28, 2025

Health Advocates & Caregivers

Bluesky starter pack

Helping make the world a better and safer place for patients.

Michelle Burleigh

@michelleburleigh.bsky.social

1 mentions

Feb 21, 2025

#LongCovid #MECFS MDs, researchers & allies

Bluesky starter pack

This starter-pack includes doctors, researchers & allies in the field of #LongCovid #MECFS and other related complex chronic illnesses. Non-comprehensive, but maybe a helpful start. If you wish to be removed, please let me know.